Diabetes Blog Week…And That’s a Wrap!

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Shameless plug: If you like what I’ve had to say this week, you can find me on Twitter @FrankSita.

I must say that I’m pretty overwhelmed at the response to my first Diabetes Blog Week. I was pretty daunted at the prospect of writing 7 posts in 7 days, but was also up for the challenge. To stretch myself creatively. Over the past 7 days I’ve had very little sleep, instead being tempted to stay up way past my bedtime to read and comment on as many of the 100+ blog posts that my eyes will let me. Of course, it didn’t help that while you dBloggers in the UK and US were waking up and posting, I was yawning and fighting the urge to go to bed.

It really has been a fantastic experience for me, as a fairly new blogger. Its really connected me with the Diabetes Online Community, and I’ve thoroughly enjoyed reading and discovering many great blogs/bloggers that I never even knew existed! And even though this event has been running for 6 years, I really think Karen Graffeo of Bitter Sweet Diabetes deserves a massive thankyou. Thank you for all your hard work in organising the event and for allowing me to participate in this experience.

Last night as I was telling my parents about dBlogWeek at the dinner table, my Mum asked me what I had learned over the course of this week. Well, a lot actually…

Firstly, type 1 in young children. I was fortunate to be diagnosed at 17, but there are so many who are diagnosed as young children. I could not even imagine. I read some really touching youth stories (thanks Very Light No Sugar). Of d-parents who get up in the middle of the night to test their little one (thanks Diabetes Advocacy). Of d-kids who are taking control of their disease (thanks Understudy Pancreas). I admire you all.

Secondly, Pumps and Continuous Glucose Monitoring devices. I’m on Multiple Daily Injections, but I’ve read so many stories about people’s lives that have changed for the better thanks to pumping. You’ve definitely motivated me to go and find out more.

Thirdly, those of you who have been living with diabetes for a long time. It really made me realise how lucky I am that I live with diabetes in 2015. Like the fact that we never had Lantus (long acting insulin) to keep our BGLs stable overnight (thanks Test, Guess and Go). Like the fact that we weren’t able to check our Blood Sugar Levels at home back then. That insulin wasn’t always safe or readily available. And that diabetes was once a life sentence (thanks RADiabetes). Today, we have inspiring people like the Type 1 Diabeater who are travelling the world and having all sorts of incredible adventures. With Diabetes no less.

And then there were the funnies. I read a Pancreas Eulogy (thanks Just Normalash). There were posts mocking all those “diabetes cures” (thanks Running Without Sugar). And all those fad diets (thanks Carb Counting Kids). A hilarious timeline of what diabetes status updates would look like (thanks Lazy Pancreas). I was fascinated at how many people were hoarding diabetes supplies (I won’t single you out!). And there were memes.

Like this one (thanks Coffee and Insulin).

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And this one (thanks Grumpy Pumper).

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And this one (thanks One Sweet Cookie).

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Thanks to everyone who has participated in Diabetes Blog Week. I just love the way its really brought the Diabetes Online Community together in a positive way. Thanks for sharing all of your stories, your advice, for inspiring me and for making me laugh. I only wish I could have read them all! Thanks for reading and commenting and for all the positive feedback. If anything, I feel even more passionate about diabetes. I feel even more empowered to write and to advocate. To read more great blog posts and make more connections going forward.

But right now, I feel absolutely burnt out (which I never thought I’d say about blogging!). And I’m dying for a good night’s sleep. See you again next year.

I’ve written this post as a participant in Diabetes Blog Week 2015. Follow #dBlogWeek on Twitter for the latest on the event and its participants.

Chasing My Dreams

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There are two posts that I’m particularly proud of on this blog. The first is my diagnosis story, “Happy 5 Years (With Diabetes).” And I poured all of my diabetes related frustrations into the second one, “The Things I Don’t Tell You About My Diabetes.”

These would by far be my favourite posts on this blog because they are so raw, so real. They are definitely worth a read if I may say so myself! As I was writing those two posts and reliving the memories in my head, the thoughts pretty much flowed straight from my mind onto the computer screen. Its the closest you’ll get to being right inside my mind, or the mind of a diabetic person.

Diabetes is such a complex disease to live with. There are so many different lifestyle factors that influence it. Like what I eat. What I drink. My physical activity (or lack thereof). Emotions. Stress. Illness. Wellness. My Blood Sugar Level. My Insulin dose. My routine. My sleeping habits. My life. And, after 5 years of living with this bloody disease, I felt I had a lot to offer. I had learned so much, experienced so much, that I might have something unique to offer through a blog.

I’ve always been fascinated by computing, technology and social media. I also love being creative. And writing. Writing is my passion. Its something I became even more passionate about after completing a degree in Marketing and Communications at uni. And I figured that a blog would be a good testament to a prospective employer. Particularly a good one.

Truth is, I spent a lot of time over thinking the concept of blogging. What would I name it? What would I write about? How often would I post? How much time would I spend on it? What blog design would I pick? How would I promote myself? How would I make it successful? Did I choose the right name? Should I change the design? Should I edit that post I drafted? It really drove me crazy. And I hate to admit it, but I probably wasted several months obsessing over something that didn’t even exist yet.

And then one day I just started writing. The more I wrote and the more I took an interest in the Diabetes Online Community (DOC), the easier it was for the ideas to come to me. Twitter is a fantastic tool for this. For every diabetes tweet you send out and every diabetes account you follow, you will probably find two more interesting articles, blog posts, people to follow and groups to join. It truly is amazing, and I daresay I have become even more passionate about diabetes since joining the blogosphere and DOC. Ironically, I didn’t even think there was much of a Diabetes Online Community, let alone diabetes blogs, when I started all of this! How wrong was I?

The response to Diabetes Blog Week has been overwhelming and has given me a lot of confidence in my blog. And reading other dBlogs has given me a lot of inspiration for my own diabetes management and a lot of perspective for my blog going forward. I only wish I had time to read all 100 of them!

My dream would be to one day turn this blog into a career. To be a diabetes advocate. Be paid to write. Sure, its hard work. Sure, it will take time. Sure, its not realistic. I’m just chasing a dream. But I’d much rather try and fail than fail to try.

I wrote this post as a participant in Diabetes Blog Week 2015. Follow #dBlogWeek on Twitter for the latest updates on the event and participants.

My Diet (On a “Good” Day)

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I’m sorry, I just couldn’t get myself excited about this post. The thought of documenting my day’s food sounded a bit boring. I really needed some inspiration in order to actually get this post up and running. So here goes…

I’ve never really been one to document my every move on Facebook or Instagram my every meal. I just don’t think people would find it interesting. And I think its pretty hard to be honest on social media when all we are really thinking about is the number of likes and “OMG babe” comments that photo will get. (Then again, I suppose I am seeking some form of attention through this blog – contradictory?)

Diabetes Blog Week has been a real challenge for me, because I would never be able to write 7 posts in 7 days – let alone quality ones! So in order to continue to stretch myself creatively, I’ve gone with something I would never do – a photo blog. This would represent a normal work day for me – I hope its not too boring!

Here goes…

When you have to be at work by 6am, the only thing that gets you out of bed is the thought of a good coffee (coffee machines are, like, the BEST thing EVER invented!)

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Followed by a quick bowl of cereal. I was eating Special K (pictured) up until recently. However, I’ve recently switched to WeetBix because it has virtually no sugar and the same nutritional benefits of good breakfast cereals like Iron, Protein, Fibre etc.

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By 10am I’m starving – time for morning tea! Its usually an apple and a muesli bar. Carman’s Muesli Bars are fantastic because they are Low GI, don’t taste overly sweet and have significantly less sugar than most other brands.

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Lunch time and nothing beats a ham and cheese toastie! Plus its super quick and easy to prepare in the morning! I always use Burgen bread as its Low GI and high in nutritional benefits like Iron, Protein, Fibre etc. Its worth the extra cost. And, of course, a nice strong cup of tea (Twinings English Breakfast) – makes for the ultimate comfort meal! Only problem is that by 2pm I don’t want to go back to work!

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The best thing about working is that you have a set routine. You get up at the same time. You eat the same foods at the same time. You don’t have time to open the cupboards and snack, so your blood sugar levels are quite often the same.

That is, until home time hits. I’m usually home by 3pm, giving me a few spare hours to open the fridge and cupboards several times before dinner and snack. Sometimes there’ll be leftover desert if there’s been a special event – that will be an absolute must. Other times it’ll be nuts, chocolate or potato chips from the cupboard. And a coffee, tea or Coke Zero to drink. I’m still struggling with this part of the day. Badly.

I’m pretty lucky to have a home cooked meal on the table at dinner time (thanks Mum!) I’m a pretty good cook myself and help out when I can too. Its usually things like pasta dishes, chunky soup, meat and veg to name a few. We also have stir-frys, tacos, rice dishes and frittatas too. Coming from an Italian family, my diet is a pretty traditional one and I don’t have much exposure to other cuisines (gasp!) or spices (gasp!). My friends couldn’t believe that I’d never eaten a curry until a few years ago! Still not a big fan.

I’m quite good at avoiding after dinner indulgence. I always remind myself of the delayed blood sugar spike that comes from eating junk food that’s high in fat. I don’t want to wake up with a reading of 15. Plus, I go to bed fairly early, so I want a clear indication of my blood sugar levels with most of my rapid acting insulin gone.

Anyway, you now have a good insight into my diet for the day. I hope you’ve found it useful. I’m really interested to see what everyone else writes on this topic today!

I’ve written this post as a participant in Diabetes Blog Week 2015. Follow #dBlogWeek on Twitter for the latest on the event and participants.

More Understanding From Diabetes Professionals

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I’ve enjoyed lots of perks being in the public health system. Namely, its cost me next to nothing, and I have had access to all of the services I need through my hospital outpatient clinic (podiatry, optometry, etc.). But one of the downsides to being in the public health system is that you don’t really get to see the same doctor every time. So you don’t really get to build that relationship, that trust, or that level of comfort that allows you to talk openly to that person. There’s also a long patient list, so there’s often a long time inbetween appointments.

I remember one of my endocrinologist appointments. I’m pretty sure it was in the first year of my diagnosis. I got my hba1c and other bloodwork done before I went in to see the doctor. I think the hba1c was somewhere in the high 7s if I remember correctly. I showed the doctor my book where I had written all of my blood sugar levels. I was newly diagnosed. There were lots of 10s, 12s and even 15s. There weren’t a lot of 5s 6s and 7s. And all that doctor could say to me as he was flipping through that book was that I had very poor control of my blood sugars.

No words of encouragement. No understanding. No support. I don’t even think he understood exactly what it was like to be a diabetic. Or what I was going through. And then he even had the nerve to start scaring me with words about diabetes complications if I didn’t get those numbers down.

I was so disappointed. Here I was, having conquered my first few months in a strange new land and yet all he could do was shoot me down. I was feeling disheartened and guilty as I walked out of that room. And my wonderful diabetes educator could see the look on my face, and asked me what was wrong. She did her best to give supportive comments and words of encouragement. She even offered to go in there and say something to that man, which I politely refused. She knew that I hadn’t been at it long. She knew that I was trying my hardest. And she clearly knew what it was like to be a diabetic (and she did not have diabetes herself).

If that doctor knew me better, if I was his regular patient, this probably wouldn’t of happened. But that’s the reality of the public health system. Its a revolving door of doctors catering to a long, long patient list. And that’s okay. But with a little more understanding and a little less judgement, we both could have gotten a lot more out of the appointment that day. If that doctor had taken a few more minutes to look at my background and get to know me, this probably wouldn’t have happened. If he had made me feel a little more comfortable, I probably would have been able to elaborate more openly about my diabetes. And he would have been able to give me better, more personalised support and encouragement.

This post isn’t a way of attcking diabetes professionals. Because I’ve also had many outstanding experiences with diabetes professionals who have gone above and beyond to help me. Encourage me. Support me. Make themselves available to me inbetween appointments. Understand me. Namely, my diabetes educator. But its also important to raise awareness that we don’t get the positive experiences, understanting and encouragement that we, as diabetics, deserve. Nobody should have to go through what I went through that day. And that’s the one diabetes thing I would like to see change.

I’ve written this post as a participant in Diabetes Blog Week 2015. Follow #dBlogWeek on Twitter for the latest updates from the event and participants.

I Am Obsessed With Perfect Blood Sugar Levels

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I think sometimes I can be over obsessed with the idea of perfect blood sugar levels. I am so obsessed that it takes over my thoughts and my actions.

Hyperglycemia. I absolutely HATE seeing a blood sugar level of, say, 20. It usually happens after a day of unhealthy eating. And other times its a complete suprise. It irritates me. It frustrates me. It angers me. It guilts me. It even cues scary thoughts of future diabetes complications. I’ll hastily grab my insulin pen, dial up a big dose, and jab it in. I know its too big of a dose, but I’m not thinking clearly. I just want to get my blood sugar levels back down to earth ASAP. And I’ll do anything to avoid seeing those numbers again. And more often than not, I’ll end up over bolusing just to ensure my blood sugar levels don’t peak that high. Which leads me to…

Hypos. Hypos make me feel weak. Tired. Powerless. Defeated. Seeing a hypo is disheartening, particularly on days where I feel I’ve done all the right things. Drenched in sweat, hands trembling, head spinning, I’ll reach for the jellybeans and start to shove them in my mouth. I hate them and the dry, sugary taste they leave on my tongue that will have me dying of thirst later on. Once I start to feel better, the feels of frustration and anger will begin to kick in. Screw it. I’ll get up and find the nicest, most sugary treat I can find comfort in. And before I know it, I’m right back where I started.

If there’s one thing I want to clean out, its my obsession with having perfect blood sugar levels. There’s no such thing. I don’t know of anyone who has perfect levels all the time. I need to accept that my blood sugars will rise and fall. I need to accept that some of the foods I eat will make my blood sugars spike higher than others. I need to stop testing five minutes after a meal and make drastic decisions to fix my blood sugar levels according to what I think they should be. I need to learn to be patient and wait for my blood sugar levels to come down naturally. And I need to accept that sometimes hypos happen, and I shouldn’t let them get the better of me.

Because if I don’t accept it all, I’ll be trapped in this vicious cycle forever.

I’ve written this post as a participant in Diabetes Blog Week 2015. Follow #dBlogWeek on Twitter for the latest updates from the event and participants.