Diabetes Musings

First World Problems

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During last week’s OzDOC chat, I was racking my brain to think of ways that I push the boundaries with my diabetes gear. Other than, you know, using a lancet to pop a pimple that’s sitting in an akward position inside my ear…(too much information?)

Then on the weekend, this happened…


I’m now reusing infusion sets. The manual insertion nature of my Animas Comfort sets make them reusable. And my Rockadex Libre patches fitted perfectly around the site, making for a clean looking, one piece adhesive to hold it all down.

So, why exactly am I doing this?

I’m on the verge of opening my last box of Animas Comforts. Besides a few spares floating around in various places, that’s all I have left. After having a few sites that have needed swapping out earlier than anticipated, I just want to make sure that this final box will last me until my new order arrives.

Why don’t I have enough of a back up on hand?

I’m still waiting on an order that I had placed through my local pharmacy in December. When my order still hadn’t arrived at the turn of the New Year, my Pharmacist suggested I order through Diabetes WA, who had 3 boxes in stock. (Diabetes WA still sell NDSS products online without the free postage option that was available prior to the changes).

I was able to get my hands on another two boxes in January through Diabetes WA. However when a subsequent order came back to me last week with the words “on backorder” written on the invoice, I began to worry that there might be shortages.

I’m told that the order from Diabetes WA is on the way in the next week, while the order from my Pharmacy is likely an issue with their wholesaler.

I’m hoping I won’t be doing this for long. The extra adhesive on my skin is annoying, I hate how used it looks every time I glance at it, and I feel cheap. Which is a very first world problem.

I’m lucky that I don’t have to resort to such desperate measures very often. I’m lucky that there’s plenty of spare insulin in my fridge should my pump consumables run out. I’m lucky that I have options when it comes to managing my diabetes.

Which is why I’ll definitely be Sparing a Rose today, and donating the gift of life to a child with diabetes in the form of insulin.

Diabetes sure does force you to get creative…


A Strong “C”

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Frank. 60%. C.

Miss, what do I need to do to get a B?

You need to work harder.

English wasn’t exactly my strong suit in high school.

I mean, I always studied English at the highest level. I always passed. My Year 12 English teacher praised my strong “C” at almost every opportunity she had.

Yet at the same time, this always irritated me. It felt like she was placing me in a box. Pigeonholing me. Telling me what I was, and what I always would be.

English is one of those subjects that is so tricky to master. You’re either really good at it, or you’re not. It wasn’t like a maths equation, where your answer is either right or wrong. It came down to my ability to analyse texts, and grasp the hidden symbols and messages. Sometimes it seemed to be more about writing what my teacher wanted to read, instead of what I thought.

I wanted to do better at English. I needed to do better. I worked so hard at it. I used to get so frustrated seeing my friend achieve scores higher than mine, without even studying for his exams. I had to move away from those 50s and into the more safer 60s, because graduating year 12 was dependent on passing English. 

English is the most important subject. My teacher’s words still ring clear in my head today. The pressure was on.

Managing my diabetes today actually feels a lot like Year 12 English. It’s about making sense of things like numbers, food, exercise and any day to day activity that I undertake. I’m constantly analysing, trying to figure out the best response to each of these variables. A pre bolus? A temporary basal rate? A carbohydrate nudge? A delayed bolus? Some time out? A good night’s sleep? It takes a great deal of hard work to figure out what the best response will be for every situation. There’s a lot of frustration, because I don’t always achieve the results I want.

It’s taken me six years to get to what I would consider a strong “C” in managing my diabetes. I walked away from my endo appointment on Wednesday afternoon with a hba1c result that I have pretty much maintained since November. I confidently talked about everything that was going on with my diabetes. I checked off all of the issues I had on my list. We had a few good laughs about not over bolusing for my meals, which is where most of my hypos are coming from.

I’ve worked so damn hard for that strong C, and I certainly don’t overlook it. That strong C isn’t just an achievement of numbers, either. It’s things like remembering to travel prepared. Making observations in my diary. Learning from my mistakes. Not hiding from my diabetes in real life. Sharing my story. Connecting with others. And, being a human being outside of the diabetes! 

I’m damn proud of that strong C. 

I hope that this strong C can be a foundation for getting my diabetes management into the Bs.

Review: The Fast Diet by Dr Michael Mosley

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I picked up the book The Fast Diet after a lousy day last week, and quickly became engrossed in it.


You’ve probably heard of the author, Dr Michael Mosley, from his show Trust Me I’m a Doctor on SBS (which is an excellent alternative to some of the manufactured reality shows on at the moment). Michael has a family history of diabetes, and began to explore intermittent fasting some years ago when his doctor told him he was at risk of developing type 2.

Better known as the 5:2 diet, the basic idea is that you eat 500-600 calories for two days of the week, ideally incorporating a fasting “window” of 12 hours or more on a fasting day. The remainder of the time, you are allowed to eat normally. Many fans observe that it doesn’t feel like a diet, because tomorrow you’ll be able to eat whatever you want. It’s a sustainable way to lose weight and keep it off. Over time, you’ll better recognise hunger and have less of an appetite for large or unhealthy meals.

The book is peppered with plenty of research, facts and statistics supporting the idea of intermittent fasting. Michael explains that people in primitive times did not eat four of five times a day like we do today. They would feast when they came across food, and would often go without for long periods of time inbetween where food was scarce.

I found it remarkable that the average time inbetween ‘eating occasions’ has dropped by an average of an hour in the last 30 years. Thinking about myself alone, I would struggle to last inbetween meals without having something – even if it’s just a coffee. At school and work, I have been engineered to have morning recess and coffee breaks, which inevitably come with the desire for food. Diabetes mags seem to encourage this notion that we have to keep eating to avoid going low. Michael also argues that the idea of eating little and eating often has been partly driven by manufacturers of snack foods.

Michael explains that while we have food digesting in our system, the body is focussed on growth and replenishment. When the body goes without food for 12 hours, it begins to do something different. It enters repair mode, instead focussed on keeping you in reasonable shape until the food returns once more. It begins doing all of the little maintenance tasks that it has put off until now – things such as breaking down or recycling old and tired cells.

For the record, intermittent fasting is not recommended for someone with type 1 diabetes. And obviously, tending to a hypo trumps a fast.

However, some of the concepts in this book really spoke to me. I really liked the idea of a mental challenge not to graze and stack insulin doses as often as I do. I struggle to get through lunch and dinner without having something – even if it’s just a coffee. I have often skipped breakfast if I’ve had a large evening meal and wait until I genuinely feel hungry again. I have found that this is a great way to “resensitise” my insulin after grazing and stacking, and that I appreciate my food more by the time I eat it. When I think about it, my best days do tend to happen when I’m not frequently grazing and insulin stacking.

Overall, the book was both engrossing and easy to read. For a while now, I’ve been keen to do something that might help me to feel a little less lousy and a little more energetic. And, of course, ensure my insulin is working at it’s best. With a commitment of only two days per week – or even just one – it’s definitely something that I’d be inclined to dabble with. 

Just Like Federer

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Earlier this month, I watched Roger Federer make his return to tennis after six months off at the Hopman Cup in Perth. At the time, I hardly would have expected him to make it to the Men’s Final of the Australian Open.

His last grand slam title was back in 2012, and he’s now well into his 30s. He was also matched against one of his greatest rivals, Rafael Nadal, against whom he did not have the odds of beating.

Yet last night, I was glued to the edge of my seat as I watched Federer break back his serve in the fifth set, and then earn a break of his own that saw him serve for the match.

It’s pretty remarkable to think that Roger Federer has been playing tennis for as long as I can remember. Although he hasn’t won a grand slam title since Wimbledon 2012, it hasn’t stopped him from continuing to play tennis.

I suppose the same can be said of Venus Williams, who scored runner up in the Women’s Final on Saturday night after a few quiet years. Mirjana Lucic Baroni, who made the Women’s Semi Finals for the first time since 1999! And Rafael Nadal, who is constantly prone to injury, but continues to persevere.

My diabetes management is feeling like a very endless task at the moment. In January, the victories feel like they have been outweighed by frustration. The motivation to diligently attend to self management tasks subsequently disappeared. The care factor has just not been there.

Yet watching some of these seasoned tennis players over the past two weeks has been so inspiring. For many of them, the victories have been far and few. Yet they continue to persevere. Their endurance never wavers. They are passionate, and enjoy what they do.

Unlike these guys, I can’t say that I am passionate about, or enjoy tending to a broken pancreas.

However just like Federer, I am confident that I will persevere to see the victories once again.

Starting the Conversation

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A few weeks ago, my friend Bec over at Sweet and Sour Diabetes wrote this post about starting the conversation around mental health. To quote Bec’s words:

“Mental health is a touchy subject. Despite increased awareness we still whisper about it. We still pretend it doesn’t exist. We hide it, and treat it like it’s something wrong to discuss. Fact is, you or someone you love have likely experienced some form of mental illness/disorder. The word sounds scary doesn’t it? Like it means you’re crazy, or unstable in some way. Interesting when you consider that earlier fact. If everyone has been touched by mental illness, why are we so touchy about it?”

I’ve been mulling over how to best put this into words in the context of myself. While I may not have a mental health condition, having diabetes certainly does have a big impact on my mental health and wellbeing.

Sometimes, I can be a real micro manager.

There, I said it.

Carefully weighing and precisely calculating every gram of carbohydrate in my coffee and slice of toast. Carefully adding up every gram of protein in that milky coffee, slice of toast, ham and hard boiled egg. On days like these, I really strive for perfection. Yet my blood sugar level doesn’t always translate to perfection in the hours that follow. I get frustrated. I scrutinise over what I did and where I went wrong. So much so that I can’t concentrate on the TV show I’m watching in the evening. Sometimes this is enough of an excuse to throw in the towel for the rest of the day.

In the complete opposite of situations, I can still be a real micro manager.

Yesterday, for instance, was just one of those days where I couldn’t be bothered bringing my lunch from home. I ended up buying a Pizza from Bakers Delight and a slice of Apple Strudel from Miss Maud next door. I swag bolused, and of course became obsessed with the graph on my Libre as I watched my blood sugar levels climb. The higher they rose, the more compulsive I became. Checking every 5 or 10 minutes. Compulsively shovelling in insulin doses of 5 or 10 units every hour because my blood sugar level simply wouldn’t come down. When they finally did begin falling at dinnertime, I had a very scary 20-something units of insulin on board that sent me into a panic. 

It’s easy to feel different, alone or isolated when I’m living with an often invisible condition that nobody else around me has. There are days where I feel like an absolute basket case, or a roller coaster of emotions. It’s easy to tell myself that those around me won’t care or understand.

So, how does one deal with all of this?

Try to lean on the people around you. This won’t automatically happen overnight, but I’ve slowly learned to lean on my family where my diabetes is concerned. I feel like I can occasionally say that I’ve had a shit night or that my blood sugars are really high, and sometimes that just makes all the difference. I find that this has given me a great deal more confidence when dealing with diabetes around others. I no longer hesitate to pull out my pump or check my blood sugar for fear of diabetes questions. I have found my voice, which helps me to get what I want for my diabetes each and every day.

Thinking about how I can relieve the frustration and anxiety. For me, taking breaks from the technology has been invaluable. Taking time out for myself. Getting some rest, going for walks, watching a good tv show, and simply taking the time to breathe. It’s easy to forget the simple things.

Trying not to sound too cliche here, but trying not to think of an unfavourable outcome as a failure. Think about what I can do differently next time. Remembering that I don’t want to eat my way out of 20 units of insulin next time my blood sugar is frustratingly high. Remembering that a string of other things could have affected my post meal blood sugar, rather than my carb counting skills. 

I’m not sure if any of this is serious enough to qualify as mental health, or if any of it makes any sense. But all of the above has been in my head at some point or another in the past six years of life with diabetes. I’m hoping that by sharing some of my deepest thoughts, someone else reading this won’t feel so alone or afraid.

It’s okay to talk about mental health.