Author: Frank

Finding a Moment Away From Diabetes

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I’m sitting here, right now, staring out at the most beautiful view of the night sky. It’s incredible. It’s breathtaking. And I’m not even perched at the top of a windy lookout tower. I’m watching from the comfort of my hotel living room, thanks to its height and magnificent floor to ceiling windows. I could actually sit here for hours and hours staring endlessly at it.

I’m watching the headlights and break lights of cars illuminated in the night sky, trying to follow them with my eyes along those roads winding out of the city. Building lights and corporate names jump out at me among the sea of bright, colourful city lights that stretch for miles and miles. Lights that get smaller and smaller the further out that I look. Lights that start to twinkle when I focus my eyes on them, like the streets at Christmas time.

Down there is the rest of the world. The world that I’m usually a part of. A world where diabetes is ever present by my side. The streets that I walk each day, with my meter and insulin pen tucked safely in my jeans and jacket pockets. The day job that I try and focus on doing between the hours of 7 and 3, whilst my mind is caught up in the “I wonder what my blood sugar levels are” game. The foods that leave me with insulin dose and carb counting questions to answer. And the pillow that I can never rest my head upon at night with total certainty.

And then there’s here. Here, up above, I feel like I’m in my own little world. Tucked away in my corner, looking down and taking it all in. Right now, in this very moment, it feels like time has stopped. It feels as though, albeit temporarily, I get a break from that great big world. And from my friend diabetes that follows me around like a heavy backpack on my shoulder (sometimes).

Right now, I get a special moment. A moment where I don’t need to check my blood sugar. A moment where I don’t need to dial up an insulin dose. And a moment where I don’t need to correct a hypo. Its the closest I’ll ever get to being free from diabetes. In this one special moment, I can just sit here with my cup of tea and take it all in.

And it’s bloody amazing.

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Since When Did Restaurants Become Dictators?

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It really annoys me how arrogant restaurants are getting these days. Gone are the good old days where you could ask for what you wanted and businesses would happily cater to you. Here in Canberra, and even more so back home in Perth, the culture seems to be more and more of “this is what we’re giving you, take it or leave it.”

Hell, some of them don’t even seem to care whether you stay or leave. And a lot of them seem keen to kick you out the minute you’ve finished eating, quickly whisking away the plates and asking if you want to order desert. 

And last night’s dining experience in Canberra would have to top them all. The restaurant where we went for dinner with the family was one of the most bizarre places I’ve ever eaten in. Some of the things I had to hear in that restaurant were beyond a joke.

We wanted to order some bruschetta for a shared entrée, and my brother asked the waitress how many serves came on the dish. “It doesn’t really come in pieces. Its just one big piece, it’s not meant for sharing,” she replied. We got it anyway, figuring that we could just cut it up.

I overheard the large table behind us requesting a jug of soft drink, to which the waitress replied “we don’t do jugs, we only serve soft drinks by the glass.”

My sister also ordered a Pasta dish, and specifically requested it without Parmesan cheese sprinkled on top, as she normally does. “Is that because you’re allergic?” The waitress asked, to which my sister replied “No, I just don’t like it.”

When I thought about this bizarre question my sister was asked, I remembered something odd that I had seen on the front page of the menu. I had struggled to understand what it meant up until then. It read something like:

“We will cater to allergies, but otherwise menu dishes cannot be changed.”

I could really empathise in this situation. I don’t significantly restrict my diet choices when I eat out. And I think a big part of that reason is because there aren’t a lot of restaurants that make me feel comfortable enough to ask for special requirements. It’s a big part of the reason why I’ll opt for table water rather than asking if there is a sugar-free beverage other than diet coke. And it’s a big part of the reason why I’ll shy away from sandwiches rather than asking if I could have multigrain bread.

Look, I’m not asking for a huge diabetes-friendly-carb-free-sugarless menu here. Part of the reason I do go out is to enjoy some of the foods I don’t get to have on a daily basis. But it would be nice if they could make an effort with some of those smaller things. Things that I know other health conscious people would appreciate, too. It would be nice if I could just ask a simple question without getting the third degree.

Melbourne seems to have the right idea. Walk into any of their laneways. Walk onto Lygon Street. You’ll quickly be greeted by a sea of restaurant owners vying for your business. They’ll ask you what you like, and they’ll make you some of those too-good-to-refuse offers. Like a free glass of wine, or a three course meal for $30. It’s a friendly, relaxed atmosphere. I feel comfortable, I have a great time, and I actually want to go back there.

But when I see restaurants who make a big deal over silly things like dinner condiments and drinking glasses, it makes me more inclined to stay home. And if that’s what eating out has become, then I’m sorry but I’ll have to leave it.

Australian War Memorial, Canberra

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I woke up after a much better night’s sleep with the morning sun blazing in through the windows. I got the shock of my life when my phone told me it was minus 4.7 degrees out there – it was pretty hard to believe from my cozy bedroom upstairs. I was beyond relieved that there were no hypos to deal with overnight, only having to get up once to pour some water down my sore throat.

Thanks to Canberra’s unbearably freezing mornings, we’ve been going out for late breakfasts, doing touristy things during the afternoon and then dinner. Eating two (larger) meals instead of my usual three has helped to compensate for all of my holiday eating. I have more time to digest and burn off my large brekky before dinner without squeezing in an unnecessary lunch for the sake of it.

I woke up to an 11.0 this morning. Not great, but understandable given the big plate of Pasta I had for dinner last night (which tends to cause a delayed rise). And by my holiday standards, excellent! But the better news came later this afternoon – a gold medal-worthy 4.5. I’ll definitely be keeping this up for the rest of the trip!

Today’s highlight was visiting the Australian War Memorial in Canberra. There was an outside memorial area, honouring all of our fallen soldiers.

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There was another beautiful view of Parliament House opposite it in the distance.

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The museum inside was full of artefacts from the wars that Australia has fought in. I don’t have the longest attention span, but you could definitely spend hours there pouring over all the exhibits. Some of the aircraft and machinery there did grab my interest and gave me some good photo challenges too.

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Not really diabetes related, but the War Memorial is a rich piece of our Australian history. Those soldiers gave their lives to make Australia the great place that it is today. One of the best places in the world to be living with diabetes (then again, I might be a little biased on that one…) And a place where diabetes doesn’t restrict me from travelling and fulfilling my dreams.

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I think the least I can do to repay the favour is take the time to go and honour them.

Parliament House

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It hasn’t been the best start to the trip for me. After being in travel mode for most of yesterday, I probably ate less than I normally would. Which meant that come night time, my usual Lantus (long acting insulin) dose was too much and my Blood Sugar Levels plummeted overnight. Twice.

I also had the WORST night’s sleep. I went to bed at 1.30am, woke up at 3.30am and again at 5.30am to deal with hypos. Add to that a dry, scratchy travel throat and Canberra’s below freezing temperatures, and you’ve got the perfect recipe for being sick. And considering that I haven’t actually been flu-sick in over a year and a half, it really does seem like bad luck!

Anyway – that’s all the diabetes talk done for the day. And I did manage to have a fantastic first day here in Canberra after all.

I finally figured out why the Politicians decided to set up base in Canberra of all places. Its so cold here that most of us will leave them all alone here to fight amongst themselves (kidding!). But yes, the weather was absolutely freezing. Like, so cold that my fingers will go numb if they were out in that wind for too long.

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The day started out with a thick blanket of fog over the city.

Which quickly cleared away to a cold but sunny afternoon spent at Parliament House.

Getting in is like getting past airport security. And if you’re lucky, you might even be pulled aside for explosives testing! I must have beeped twice going through, forgetting to take off my belt and my insulin pen.

I’ve only been there once before on a day trip from Sydney, so it was great to be able to take my time there this time around.

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Like standing where the reporters stand.

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Having a photo in that marbled foyer.

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Checking out the sitting rooms where those politicians argue with each other all day.

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And walking those corridors that some of the highest paid public servants have walked.

More importantly, this is the place where decisions are made and debated upon relating to me and thousands of other people living with diabetes here in Australia. Like access to subsidised diabetes supplies and equipment, and healthcare schemes like the NDSS, which help to deliver these resources. Not all of the outcomes decided here are a complete win for people like me, but overall I’d say I’m pretty lucky to have diabetes here in Australia.

This afternoon did a lot to lift my spirits. I’ve gone pretty cautiously on the food and insulin so as not to go hypo again tonight. Now all I need is a good night’s sleep and a clear throat by morning and I’ll be a happy man.

Holiday Headspace, With A Side of Diabetes

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When I go travelling, I’m the first to admit that I tend to take a “break” from diabetes. Then again, I can’t literally take a break from diabetes. But I do put it on the back bench. I decide to enjoy all of the holiday eating that comes with travel, and just do enough to get by. I don’t pay too much attention to my blood sugar levels when I’m travelling. But I know there is a lot of extra bolussing. Lots of spikes and lots of surges. Diabetes “Rest” Mode.

If there is one thing I do hope to achieve from this trip, its to be a little more sensible. I don’t exactly enjoy watching my BGLs surge after that massive lunch and then having to fix those nasty lows that come afterwards. I don’t enjoy walking around uncertain of where my Blood Sugar Levels might be at this point in time because of all that spontaneous eating. I want to tuck into some good holiday food, but I also want to be sensible at the same time.

I have had a LOT of conversations about this trip with others over the last couple of weeks. And the thing that everyone loves to remind me of is just how cold Canberra is going to be at this time of year. Over and over. I say bring it.

There’s one particular conversation that did stand out to me. I was talking about travel with a friend at work a few weeks ago. She also happens to be jetting off on the same day as me, and we’ve been counting down the days together for weeks.

“Think of all the wonderful sights you’ll see in your lifetime,” she said.

We both agreed that we weren’t big on travelling for long periods of time. That we both missed the comforts of home, and that we would get sick of eating out all the time while on holidays. I brought up the fact that I had diabetes, which did make eating out a challenge.

“But you walk around a lot and exercise, won’t that help with your sugar levels?” She said to me.

“I have type 1 diabetes. Sugar has nothing to do with it. My body just can’t process most of the foods that I eat,” I replied.

No resentment here. It’s just one of many examples of how much type 1 unawareness we have in this country. Even people who know me, who talk to me everyday, still don’t get it. They think that somehow I got this disease because I was unhealthy.

But anyway, fast forward to now. It’s taken me ages to get into that holiday headspace. And its finally hit me, sitting at the airport (which looks WAY too deserted to be the Capital of Australia). The holiday (and much cooler) me has taken over, ready for some new adventures.