Ups and Downs.
The biggest misconception about diabetes is that you become unwell, you receive a diagnosis, and then you get better.
It’s easy to see it that way.
People don’t tend to see the marks on the tips of my fingers, the chalky orange powder on my tongue, or the pump sites hidden underneath my shirt. They don’t see the pager in my pocket, the thousands of thoughts racing through my head, or the life saving stash of insulin in my fridge.
When I look back on my own journey, I concur that I’ve come a long way from where I was in the beginning. I feel more informed, more connected, more supported and am managing in the way that I have decided truly works best for me. Plus, I have an additional decade of experience under my belt than I did back then.
While all of these incredible things have made my life with diabetes so much better, they don’t make diabetes itself ‘better.’ Diabetes doesn’t go away, even if you don’t see it. As much I love to shout to the world about all of the incredible things that have enriched my life with diabetes, it’s not without its challenges.
Diabetes still affects me.
There are days where I feel like I am flying high and could do absolutely anything. This weekend, for example. An amazing, sunny weekend where I drove myself down to the beach, cleaned out the inside of my car, ran some errands, finished my book, made zucchini slice and jelly crystal cookies.
Equally, there are days where I can really feel the weight of trying to manage diabetes in amongst the remainder of my life. A mere few weeks ago, I was juggling my day job while spending long hours revising for my uni exams. Which were on a computer, in the middle of a pandemic. On my last day at work before a much needed break, I was feeling exhausted, moody and withdrawn from everyone around me.
Over the years, I truly feel as though I’ve poured both the ups and the downs of life with diabetes onto the pages of this blog. Some feel there’s too much doom and gloom in diabetes narratives – and can’t relate to some of the things I’ve written about. Many of you have also provided amazing support when I’ve written about the tough times.
But the truth is, I don’t do it for the feedback good or bad. I just know that it’s something that I want to see in the narrative about diabetes.
This is our week to scream diabetes awareness out of every corner that we possibly can. If you don’t have diabetes, this is your week to listen to and amplify the voices of people with diabetes. This year’s theme is diabetes and mental health, and it’s definitely a topic that is worthy of more attention. Especially now, more than ever, given the times that we live in.
Keep an eye on Diabetes Australia’s socials for details of what’s happening this week. In particular, there’s a livestream discussion happening on Wednesday night at 7.30pm AEST on the Diabetes Australia Facebook page.
Happy National Diabetes Week.