When I first started writing here on my blog, I remember seeing lots of the more serious stuff from the diabetes orgs. That diabetes is the leading cause of this, and puts you at a greater risk of that. I can still remember seeing all of those messages, and wondering where all of the positive stuff was. In a small way, I just wanted to show a different side to diabetes. A more positive side.
I can remember wanting to write about things like Climbing the Sydney Harbour Bridge, graduating from uni and blowing out the candles on my birthday cake. I wanted to churn out those positive messages about people with diabetes being superheroes, able to do absolutely anything that they set out to do. Because after all, why shouldn’t we?
At the time, living with diabetes was hard. I had no peer support. I didn’t feel confident navigating this condition around my life. I didn’t even know what the hell I was doing. This crazy journey has also taught me for a second time that living with diabetes is hard.
It’s hard playing pancreas. It’s hard finding the mental space and physical energy to manage this condition. It’s hard to give myself encouragement when I’m so invested in the numbers and only have myself and my long term health at stake. It’s hard not to be consumed over how well placed I am to continue to be able to afford my diabetes care into the future.
Diabetes is serious. As I’ve began to take my condition more seriously, I’ve come to appreciate the importance of getting all of those annual screenings. I want to be aware of those things that diabetes might put me at risk of developing. I want to engage in some of those more difficult conversations. In 2019 people are still dying from missed diagnoses and the exorbitant cost of insulin abroad.
Diabetes tools and tech have also come a long way in the short time that I’ve lived with it. I remember my diabetes educator requesting a special USB cable and software from Abbott just so that I’d be able to see my BGLs on a computer screen back in 2010. Today those readings send wirelessly to the mySugr app on my iPhone for instant review. Then there’s things like NovoPens, insulin pumps, Libres, CGMs, faster insulin and closed loop. Phew!
So, I guess the point of this long winded post is that the world of diabetes through my eyes has become this great big complex, serious and even political thing over the past few years. While that’s never going to go away, I guess I’d like to be reminded of some of some of that not-so-serious stuff more often as well.
Like this poster that I was reminded of earlier this week, a few days too late after National Diabetes Week. And the frame above it sitting proudly on my wall, both bringing a smile to my face when I think of them.