Month: August 2018

YpsoPump: Eight Weeks Old!

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I was full of enthusiasm when I learned that I would have the opportunity to road test a new diabetes toy in the YpsoPump.

The YpsoPump does have a fair few differences to traditional insulin pumps, but for the majority of my eight week adventure these differences were far outweighed by its sleek and lightweight nature.

With a stockpile of supplies belonging to my late Animas Vibe sitting in the wardrobe, I made the decision to pull my old pump out of retirement two weeks ago. It actually has reminded me of some of the features that I have been missing.

One of my biggest issues with the YpsoPump has been occlusion alarms. Unfortunately, at least 1 or 2 infusion sets in each box that I have used so far have triggered occlusion alarms. There have been no visible signs of site failures such as kinking or bleeding. High blood sugars clearly indicated that insulin was not getting through, however the alarms only seemed to trigger during a decent bolus of at least 3 units.

I’ve been connecting to a new infusion site at mealtimes where I’ll give a decent bolus, hoping that any occlusions will be triggered. I have reported the issue to Ypsomed with little answer, although I was pleased that my level of diabetes knowledge was acknowledged over the phone. I do wonder if this is simply an issue of me being too thin and lacking enough tissue to cushion the cannula beneath my skin.

I do also miss having the option of having infusion sets that sit on an angle beneath my skin. I can really feel the Ypsomed sites ‘digging in’ when I’m lounging on the couch or sleeping. The marks and bumps left on my skin after removing an infusion set also seem bigger, presumably from the sets ‘digging in.’

Being fairly thin, I don’t think the Orbit inserter is the best practice for me to apply a new infusion site. Inserter devices didn’t agree with me on my late Animas Vibe. While my experience was better than the Animas insets, I definitely intend on manually inserting my sets when I next use the pump.

The one thing I would change about this pump is its lack of a built in bolus calculator. While performing bolus calculations on my iPhone is largely okay, I have found myself slacking off here and there. I’d also like to see more customisation in Ypsomed’s bolus calculating app, such as being able to adjust insulin to carb ratios for things like physical activity.

It was also far too inconvenient having to wait for the app to sync with the pump for insulin data to perform a bolus calculation. Bluetooth was also a significant drain on the pump’s battery. I have since switched the bolus calculator to Multiple Daily Injections mode, instead relying on my ability to log all of my bolus calculations to obtain accurate insulin data. With Bluetooth switched off, I’ve also managed to get a more decent 21-24 days from an Energiser AAA battery.

The thing I like most about the YpsoPump is its sleekness, size and lightweight nature. I have definitely missed that in these past two weeks, especially when I’m travelling and have other things to carry around in my pocket as well. I feel confident that I can live with those differences in return for its weight – particularly in the Summer, when pump complacency is a real issue for me.

The YpsoPump has definitely been a learning curve over these past eight weeks, but as with all other aspects of managing diabetes, I’ve learned how to best make it work for me.

Disclosures: Ypsomed Australia provided me with a YpsoPump, infusion sets, reservoirs and an inserter to trial at a launch event in Sydney. There was no expectation that I would blog, or even trial the pump itself. All opinions expressed here are, as always, my own. 

Remembering My ‘Why.’

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I often marvel at just how much I’ve gained from being a part of the diabetes community.

From talking to people connected to diabetes, to being my own advocate in my diabetes care, raising my voice, asking questions, attending local diabetes events and volunteering my own time toward causes that I am passionate about.

While it’s true that diabetes, and more specifically diabetes blogging, has given me a lot of amazing opportunities, it truly is the community around the diabetes that has given me the most.

Four years ago, I knew next to nothing about diabetes. I was injecting insulin and checking my blood sugar, feeling very conscious of the people around me. I had no confidence in what I was doing. I was riding the rollercoaster, ever so helplessly.

Unfortunately the public system here in Australia, while fantastic, is geared toward clearing those clinic corridors and pushing the person with diabetes toward self-management as soon as possible. More so when you’re someone who is coping relatively better than other patients, even if it doesn’t necessarily feel that way to you.

For me, the lightbulb switched on when I first joined Twitter in 2015.

I had no clue that there was such a valuable resource in other people with diabetes available at the touch of my fingertips. I had no clue that talking to other people with diabetes was a thing, whether that be on Twitter, closed Facebook groups, Instagram, blogs, forums or something else. Those online connections eventually led to in person ones.

The diabetes community would have to be the single biggest thing that has helped me to live well with diabetes, both physically and mentally.

A great deal of what I have learned about diabetes has come from hearing the experiences of others. It certainly goes a long way in complementing the 99.9% of time that I spend outside the company of a healthcare professional.

It makes such a huge difference to know that there are others going through what I’m going through. I daresay that it even inspires, and motivates me to keep going in the daily grind that doesn’t end at 4pm on a Friday or the week before Christmas.

At the same time, I’ve also been authoring this little blog that you’re reading. Here’s the thing. I’ve always admired blogs. Long before diabetes came into my life, and also long before they were somewhat replaced by social media.

I blog for one reason, and one reason alone.

Myself.

I can’t speak for, or represent anyone other than myself through my words here.

However I do hope that through this little corner of the internet, I’ve been able to get some of that information out that I so desperately needed to find four years ago.

As I round out blog post number 500 here at Type 1 Writes, I can confidently say that this is my ‘why.’

Marvelling at the beauty of this building in Leichhardt, NSW, in the same way I marvel at how much diabetes has given me.