I wish someone had told me that infections trigger the liver to dump additional glucose into my bloodstream. Then I may not have felt so frustrated over high blood glucose levels.
I wish someone had told me to increase my long acting insulin dose to combat the sick day insulin resistance. Then I may not have gone stir crazy when my levels wouldn’t budge despite correction after correction.
I wish someone had told me that work would be able to survive without me for a day. Then I wouldn’t feel riddled with guilt for spreading my germs over keys and pens and phones. Or live to regret the miserable sight that I am to be around when unwell.
I wish someone had told me that a statutory declaration is sufficient evidence for not being present at school or exams or at work. Then I may have saved myself a few unnecessary trips to the doctor.
I wish someone had told me that putting the Vicks under my nostrils before bed might just help to relive my congestion. Then I wouldn’t be left tossing and turning through the night, plagued with blocked nostrils and piles of wet tissues.
I wish someone had told me that keeping hydrated might just help manage high blood glucose levels. Then I might not end up sculling fluids down when I’m on the borderline of ketones.
I wish someone had told me to get into a habit of washing my hands after coming into contact with others, and especially before food. Then I might not find myself off sick all that often.
I wish someone had told me that I could treat my hypos with juice. Then I wouldn’t be forced to endure jellybeans on a sore, bone dry throat. Or have to worry about keeping my hypo food down.
I wish someone had told me that it’s okay to sleep. Stay in pyjamas, watch Netflix or comfort eat.
I wish someone had told me that I’d weather the storm. The high blood glucose levels, the misery and everything far from the norm.
Kristin Hanson Gonzalez
Hi Frank, I read all your posts and I feel so sad that you are to having such a struggle with T1D. I can relate to the constant frustration! I’m the mom of a T1D teenager and the best thing that ever happened to us is reading this book: “Dr. Bernstein’s Diabetes Solution” Have you heard of it? If not, go get a copy today! He outlines EVERYTHING you need to to know about being a T1D…including sick days. He is T1D too. His methods have given us our lives back. No more crazy highs or scary hypos, just beautiful nearly flat lines on the CGM readout and A1c of 5.0% (I’m not sure what that equates to in Australia) I’m not kidding about the amazing results. Everyday is not perfect, but the kid is so much happier and getting back to his happy-go-lucky personality. Best of luck. I’m rooting for you all the way from Oregon!
Hope you are feeling better soon.
One of the first things my endo taught me was sick day management – within days of diagnosis I knew my sick day plan better than how to carb count and self-titrate.
Sorry to read you didn’t get this. It would be great to see standardised care and things that Drs should cover when people are diagnosed with diabetes.
Thanks, Ashleigh. I think it was just very vague – I never fully understood what a sick day plan meant until later on.
This is horrible. 🙁 You should absolutely have gotten all of this when diagnosed. Sick day plans are drilled into our heads here to the point where I am like I KNOW. I’m sorry you missed out on that. Hopefully your story is one that helps change things in Aus. 🙂